Our Journey as a Medically-Complex Family

Peter was born premature at 30 weeks and diagnosed with Goldenhar Syndrome.  He's undergone 34 surgeries in 19 years.

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Productive and caring communication benefits both the patient and the provider by reducing stress and anxiety, improving patient safety and quality of care, and lowering healthcare costs.  We've identified five pillars for successful patient/provider partnerhips. 

Dede and Peter have presented at medical conferences, participated in learning collaboratives, and advocated on behalf of children's hospitals in Washington D.C.  Invite them to speak at your next conference or to participate in a project with your facility or business.